Tuesday, July 26, 2011

Rethinking the name of this blog ...

because tonight I'm feeling kinda broken AND beaten.

So you all know that I have the big D, Diabestest disease in the whole world. But what you may not know is that we deal with not one CHRONIC disease in this family, but two.

Little dude has Autism (so does the big dude so I suppose technically, we have 3 chronic diseases although 2 are the same.) Yep, we're a whole family of broken people. We are sooo not the Brady bunch! Wow, though I would pay money to see that sit-com.

And to be absolutely specific, Little Dude has PDD-NOS (wha? you are probably saying) That is he has Pervasive Developmental Disorder—Not Otherwise Specified. (PDD-NOS) is on the autism spectrum and is often referred to as atypical autism. Probably more information than you needed to have.

How it presents itself is with OCD, Anxiety, Dyslexia, and ADHD-like behavior (did I mention OCD and Anxiety?). And as much as I love Little Dude ... it is tiring and overwhelming sometimes. Given that I am already tired and overwhelmed by my OWN chronic disease ... Houston we have a problem.

Right now we are struggling with a side affect of one of his meds. Specifically the medicine gives him the trots. This is not a great complication for a kid who already obsesses over germs and cleanliness. So in addition to cleaning up his messes, and encouraging him to put lotion on his red, raw hands, I spend much of my day explaining how his immune system works and why it's not really germs that are making him sick.

Thankfully, we see his doctor on Wednesday.

All I can think of is the slogan, "Better Living Through Pharmacology" and I'm thinking, better for whom?